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View Full Version : M.E - Myalgic Encephalopathy.


BeautifulDisaster
February 3rd, 2010, 01:59 AM
I am currently under investigation in having the condition M.E.

I was diagnosed last year, but it needs to be confirmed.

I am moderately-severely affected.

I just posted this on a group on Facebook called:

"If M.E isn't a real illness, why did I give my life up?"


"I just love being in pain, exhausted, fatigued, I love the muscle weakness, the headaches, the eye pains, the sore throats, the swollen painful glands, the breathing problems, the shakiness, the unstable balance, the appetite loss, the nausea, the constipation, the brain fog, the heart problems, the confusion, the anger, the upset, the fact my life has drastically changed & has ruined so many things since developing this apparent non existence medical illness.

Oh, & I just love being misunderstood, oh & don't forget the the no sympathy from others, but instead, the ignorance, the abuse, & the neglect.

Yes, of course this isn't real.
It's all in my head.
It's fake.
It's attention seeking.
It's laziness.
It's psychological.

Of course it is.

=l "


I think a lot of the posts on that place give a strong view of what it is like, & even then, you cannot understand what it is like for someone who has M.E, especially those who have it severely.

I really hope one day, & soon, people will not think such things about this dreadful illness.
It will be accepted as just that, an illness.
A very debilitating, life changing, and even life threatening, illness.

It is so damaging for someone who has M.E to be told those things, it can in fact, cause severe depression, anxiety, etc.

It can even lead to that person killing themselves...

It is so cruel to say such things to anyone... let alone someone who is suffering.

You would not say this to someone who has cancer, or leukemia, so why in the heck would you say this to someone who has M.E?

It is a real illness.

It is very real, and the sufferer has to put up & deal with so much crap because of this illness.

It can be so severe that you need to go into hospital, have a feeding tube placed into you, a drip, a breathing mask, etc, because it can be that serious.

Some have to use wheelchairs because they cannot handle walking.

Some are completely bed bound.

Some for weeks... months... even years on end will be house/bed bound.

I've met a lot of people who have to deal with the crap they get from others.

It's disgusting how cruel others can be.

Anyway, I just thought I'd post this.

Sapphire
February 3rd, 2010, 04:42 AM
:hug3:

BeautifulDisaster
February 5th, 2010, 06:15 AM
Thank you Sapphire.

Sapphire
February 5th, 2010, 06:33 AM
Sorry for not having any great words of support but just wanted you to know that I'd read and I was thinking of you.

BeautifulDisaster
February 5th, 2010, 06:42 AM
No no, I appreciate it completely either way.