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View Full Version : Users with fibro/CFS?


Magenta
August 11th, 2015, 10:39 AM
I need an opinion here or at least some sort of explanation of how it makes you feel. I can read on Google all day but it doesn't really make anything feel more specific. I don't want to make a doctor's appointment just yet because I have a long history of going to the doctor over the same problem and being dismissed.

I'm just in pain so often. Usually it's this ache that won't go away or a shooting pain in my joints or my back. I have constant headaches and I'm already a chronic migraine sufferer. Today I woke up with a migraine, back pain, stiff hands, and I've taken over the counter painkillers and it hasn't helped. A heating pad is only slightly helping my back but my hands and wrists are so sore. And I have an icepack for the headache. I can barely stand to go out and be on my feet longer than an hour and come home exhausted. Everything is exhausting. I'm supposed to start my first year of university in the fall and just now is everything flaring up. On a scale of 1-10 it's been about a consistent 4/5 with maybe a 6 or a 7 with the shooting pain. It can't be arthritis because my range of movement still seems fine and the stiffness goes away after awhile in the mornings. I know I have the symptoms for Restless Leg Syndrome and carpal tunnel but I know that doesn't usually spread to your back, shoulders, neck, and even down to my ankles. Those are just some of the symptoms, not mentioning the cognitive problems.

But I get the impression from people I've met from fibro that the pain is usually tear-inducing. I mostly want to cry less because I'm in pain and more because it's just enough pain to make me frustrated because it's stopping me from even bothering to get out of bed. Not great when I'm interviewing for jobs too.

Help? I just feel like my doctor is gonna call me a hypochondriac, test me for everything else like the other one did and say I'm fine. That was five years ago and if anything, I feel worse. One doctor keeps saying it's just stress/anxiety/depression/other mental health problems but I've upped my anxiety meds and I'm stressed but less stressed than I've been in years and suddenly it's still really bad.

StoppingTom
August 11th, 2015, 09:17 PM
From what I've read, it seems very possible! I think you're well within your rights to have concern about this (the stiffness and inability to stay on your feet especially, IMO.) and I think it would do you a lot of good to see your doctor. Even if it isn't CFS, they may be able to find what's up or prescribe something for you that can at least ease your symptoms.

Best of luck, keep us updated!

Magenta
August 12th, 2015, 01:45 AM
From what I've read, it seems very possible! I think you're well within your rights to have concern about this (the stiffness and inability to stay on your feet especially, IMO.) and I think it would do you a lot of good to see your doctor. Even if it isn't CFS, they may be able to find what's up or prescribe something for you that can at least ease your symptoms.

Best of luck, keep us updated!

Thanks. I made an appointment for Thursday so I guess we'll see what the first step is. Probably taking more blood but whatever, that doesn't bother me.

Magenta
August 17th, 2015, 11:12 PM
Bumping my own thread, in case anyone wanted an update:

No actual answers yet though I was diagnosed with carpal tunnel (surprise, surprise). Had like five vials of blood sacrificed to the vampires-- er, labs, and we'll see what those come up with. My doctor thought she felt a bit of a lump on my thyroid so I have an ultrasound this week.

A thyroid issue would explain a lot of this rather easily but I've been tested for them before which is why I hadn't really considered it again. Guess I'll just have to see what the ultrasound turns up.

StoppingTom
August 17th, 2015, 11:18 PM
Bumping my own thread, in case anyone wanted an update:

No actual answers yet though I was diagnosed with carpal tunnel (surprise, surprise). Had like five vials of blood sacrificed to the vampires-- er, labs, and we'll see what those come up with. My doctor thought she felt a bit of a lump on my thyroid so I have an ultrasound this week.

A thyroid issue would explain a lot of this rather easily but I've been tested for them before which is why I hadn't really considered it again. Guess I'll just have to see what the ultrasound turns up.

It's good you're getting some answers at least, do you feel any better or worse about this now that you might figure out what's up?

Magenta
August 18th, 2015, 01:59 PM
It's good you're getting some answers at least, do you feel any better or worse about this now that you might figure out what's up?

Eh, I'm kinda staying neutral. There's really nothing solid right now and I'm pretty calm until someone tells me there's an actual problem. Waiting for the blood results to come back and seeing what the ultrasound turns up tomorrow.

Though I do have to go pick up some wrist splints for the carpal tunnel so hopefully that'll help with that issue.