Jack1245
December 5th, 2012, 08:01 PM
I kinda just wanted to see how many of you guys are actually on this site, if any.
What are your diagnosis stories? How have you delt with it?
Here's my story:
So a couple of weeks before my twin brother and I were due to be born, my mom went in for a normal ultrasound. But they noticed a tumor in my pancreas. So they induced my mom in labor and she had my brother, then me the next evening. When I was born my brother and I went through a series of tests and a few hours later it came back that I had type 1 diabetes and stage 2a pancreatic cancer, I also wasn't producing enough pancreatic enzymes, when my brother was perfectly healthy. When I was 3 days old I was taken to St. Jude's Children's to begin treatment. I went through many rounds of radio and chemotherapy and also lots of surgery, and it wasn't going away, since the only way to get rid of pancreatic cancer for sure is to remove all or part of the pancreas and they didn't want to do that until they knew that there was no other way I was going to recover. When I was 3 and a half, the pancreatic cancer got to stage 4 and spread and caused leukemia. A few months later they had no choice but to remove 70% of my pancreas. By this point I was left only with leukemia, still having chemotherapy. When I was 6 the leukemia began to spread, first it spread into my brain and formed a medulloblastoma tumor, then to my bones (osteosarcoma), by the time I was 7 and a half I had 9 different types of cancer (acute lymphoblastic leukemia, osteosarcoma, medulloblastoma, liver cancer, stomach cancer, rhabdomyosarcoma, pancreatic cancer (yes it returned), kidney cancer, and brains team glioma. I got the rest of my pancreas removed too. About a month before my 8th birthday they told my family they're going to pull the plug in 20 days, and 20 days just happened to be my 8th birthday, which is also my brother and my best friends birthday. But they couldn't change the date because of some policy they had and the minimum time they could give was 20 and I was already in so much pain so they wanted to do it as early as possible. So my birthday came and they turned off my life support. The monitors went flat. My entire family was with me sitting with me when I went. Then like you would when you die, I experienced heaven, it was only about 15 second, but it felt like 10 minutes. I just felt this unconditional love and health and happiness and stregnth, the feeling was stronger than I've ever felt anything before. I met God, and he basically told me this isn't my time, which confused me a bit because he brought me all this way, just to send me back. But I know he did it for a reason. Then I hear my heart rate monitor start beeping again and I wake up. I feel healthier than I've ever been in my entire life, all my lumps and bumps from the tumors were gone. I got tested and I was only left with leukemia. I was so healthy that I didn't need any treatment apart from immunotherapy once a month for 2 and a half years. Then when I was 10 and a half I needed to go back in for chemotherapy for 8 rounds. After 7 rounds my leukemia was gone, but they still did one round just to make sure it was all gone. I was in remission until August 2012 when I discovered a few lumps on my arm, which were osteosarcoma. I got them removed and also had 1 round of radiotherapy. And I was in remission again until November 2012 when I discovered a lump on my pelvis and it was an Ewing's sarcoma tumor which I got removed also with immunotherapy and radio therapy everyday for a week.
What are your diagnosis stories? How have you delt with it?
Here's my story:
So a couple of weeks before my twin brother and I were due to be born, my mom went in for a normal ultrasound. But they noticed a tumor in my pancreas. So they induced my mom in labor and she had my brother, then me the next evening. When I was born my brother and I went through a series of tests and a few hours later it came back that I had type 1 diabetes and stage 2a pancreatic cancer, I also wasn't producing enough pancreatic enzymes, when my brother was perfectly healthy. When I was 3 days old I was taken to St. Jude's Children's to begin treatment. I went through many rounds of radio and chemotherapy and also lots of surgery, and it wasn't going away, since the only way to get rid of pancreatic cancer for sure is to remove all or part of the pancreas and they didn't want to do that until they knew that there was no other way I was going to recover. When I was 3 and a half, the pancreatic cancer got to stage 4 and spread and caused leukemia. A few months later they had no choice but to remove 70% of my pancreas. By this point I was left only with leukemia, still having chemotherapy. When I was 6 the leukemia began to spread, first it spread into my brain and formed a medulloblastoma tumor, then to my bones (osteosarcoma), by the time I was 7 and a half I had 9 different types of cancer (acute lymphoblastic leukemia, osteosarcoma, medulloblastoma, liver cancer, stomach cancer, rhabdomyosarcoma, pancreatic cancer (yes it returned), kidney cancer, and brains team glioma. I got the rest of my pancreas removed too. About a month before my 8th birthday they told my family they're going to pull the plug in 20 days, and 20 days just happened to be my 8th birthday, which is also my brother and my best friends birthday. But they couldn't change the date because of some policy they had and the minimum time they could give was 20 and I was already in so much pain so they wanted to do it as early as possible. So my birthday came and they turned off my life support. The monitors went flat. My entire family was with me sitting with me when I went. Then like you would when you die, I experienced heaven, it was only about 15 second, but it felt like 10 minutes. I just felt this unconditional love and health and happiness and stregnth, the feeling was stronger than I've ever felt anything before. I met God, and he basically told me this isn't my time, which confused me a bit because he brought me all this way, just to send me back. But I know he did it for a reason. Then I hear my heart rate monitor start beeping again and I wake up. I feel healthier than I've ever been in my entire life, all my lumps and bumps from the tumors were gone. I got tested and I was only left with leukemia. I was so healthy that I didn't need any treatment apart from immunotherapy once a month for 2 and a half years. Then when I was 10 and a half I needed to go back in for chemotherapy for 8 rounds. After 7 rounds my leukemia was gone, but they still did one round just to make sure it was all gone. I was in remission until August 2012 when I discovered a few lumps on my arm, which were osteosarcoma. I got them removed and also had 1 round of radiotherapy. And I was in remission again until November 2012 when I discovered a lump on my pelvis and it was an Ewing's sarcoma tumor which I got removed also with immunotherapy and radio therapy everyday for a week.