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Old February 1st, 2019, 03:04 AM   #1
underboss19
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Default Could I have 48, xxxy Syndrome?

hey so you may have seen my other post about me being a 19 year old man who hasnt reached puberty yet... yes that is true however i do have pubic hair and i do have a tiny bit of armpit hair. but i have no other symptoms. i have no facial hair my voice is highish and i never hit a growth spurt. my size is 1.8" and my testicles are very small and firm and i can squeeze them back into my body. i also have little feeling in my genital area. HOWEVER when i was about 17 1/2 years old i noticed the first signs of puberty and now that i am a few days away from turning 19 people say i sound a little older on the phone and my aunt and uncle say that i looked like ive grown a little taller! finally! i was reading about klinefelter spectrum and i was directed to a site that told me about 48 xxxy syndrome and i have been diagnosed with lots of the symptoms such as global developmental delay, learning disability, language impairment, asthma, ear infections, delayed eruption of teeth, hypotonia, respirtory infections, abnormal heart morpholgy. there are other symptoms that i have not been diagnosed with but im pretty sure i have like adhd, gynocamastia, and i am very tall for my age. i am also very very friendly but i have a hard time picking up on social cues and expressing myself. i even go to a social group for it. is it possible the reason for all these diagnosesses is the mis diagnosis of 48 xxxy syndrome? i mean it would explain alot. what do you think i would love to hear your opinion
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Old February 1st, 2019, 07:07 AM   #2
ska8er
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Default Re: Could I have 48, xxxy Syndrome?

U cant b diagnosing urself and saying
u have this and that. Only a trip to the
doctor and thru tests they can tell u y
things r the way they r. No one here
can determine y things r happening
with ur body. That would b guessing
and it wouldn't help u.
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Old February 1st, 2019, 07:19 AM   #3
EvaNL
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Default Re: Could I have 48, xxxy Syndrome?

Go to the doctor!
No-one on the internet can, will and should diagnose you.
Seriously.

I'm les, feel free to contact me
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Old February 1st, 2019, 07:29 AM   #4
Oscar2005
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Default Re: Could I have 48, xxxy Syndrome?

Quote:
Originally Posted by ska8er View Post
U cant b diagnosing urself and saying
u have this and that. Only a trip to the
doctor and thru tests they can tell u y
things r the way they r. No one here
can determine y things r happening
with ur body. That would b guessing
and it wouldn't help u.
Agree 150%
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Old February 1st, 2019, 08:53 AM   #5
blnwkbl
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Default Re: Could I have 48, xxxy Syndrome?

I agree with above, we are not doctors. Only a doctor could tell you, and that's what you should see one. Only a doctor can heal you.
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Old February 1st, 2019, 09:19 AM   #6
Sailor Mars
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Default Re: Could I have 48, xxxy Syndrome?

Puberty for All VTGH

As a certified and licensed internet doctor, I’m prescribing a visit to an actual doctor.

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Nice salt pouch, asshole
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Old February 1st, 2019, 10:24 AM   #7
Hermes
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Default Re: Could I have 48, xxxy Syndrome?

Are you sure you have not been diagnosed with it, just not told the diagnosis? The other obvious question is whether, if someone told you that this was the thing that unified all of your symptoms, it would change anything? As far as the medical profession are concerned, the point of a diagnosis is to work out what treatment, if any, is likely to be sucessful. From a quick search I found an article at: https://rarediseases.info.nih.gov/di...8xxxy-syndrome which said that there was no single treatment and that each related condition has to be treated separately which is presumably what is already happening?

Still, there is no harm in seeing your doctor and asking the question.
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Old February 1st, 2019, 04:00 PM   #8
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Default Re: Could I have 48, xxxy Syndrome?

haven't had a growth spurt....but you're very tall for your age??

makes total sense.

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Old February 2nd, 2019, 08:40 PM   #9
Red Light Bandit
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Default Re: Could I have 48, xxxy Syndrome?

From what you say it seems something quite serious, I would recommend that you seek a doctor to have a professional help with it
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Old February 3rd, 2019, 09:22 PM   #10
Katie2003
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Default Re: Could I have 48, xxxy Syndrome?

I agree with what everyone has said. Whether a person has physical problems or emotional ones, we must NEVER self-diagnose. Only people with the proper training and experience can do that.

What I do know is that those who have delayed puberty and nothing is happening by age 16 are then looked at more carefully to rule out hormonal or other issues. Up until then it's not considered a major issue.
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Old February 4th, 2019, 01:36 AM   #11
bougainvillea
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Default Re: Could I have 48, xxxy Syndrome?

Klinefelter’s syndrome is something you’re born with, so if you did have it you have to go a doctor and see for yourself; you may show many of the physiological symptoms but we cannot analyse your chromosomes.
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Old February 4th, 2019, 06:09 AM   #12
Hermes
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Default Re: Could I have 48, xxxy Syndrome?

Quote:
Originally Posted by BlackParadePixie View Post
haven't had a growth spurt....but you're very tall for your age??

makes total sense.
That isn't as absurd as it sounds. Normally babies grow fast at least as far as toddlerhood and then slow down during the middle part of childhood only to accelerate again at puberty. So, what if a condition meant the slow down never happened?
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Old February 7th, 2019, 09:26 PM   #13
Uniquemind
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Default Re: Could I have 48, xxxy Syndrome?

The only way to be sure is to go to your doctor and ask for a karyotype test to be done.

This specific condition you mention about, is diagnosable, but it will require scientific lab analysis of your chromosomes.

However, that being said you should never self-diagnose, always go to a doctor, and even then, get multiple different opinions from different doctors.

Doctors definitely have biases too and sometimes it helps to get a 2nd and 3rd medical opinion.
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