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View Full Version : Spoonie Central (Sufferers of chronic physical and mental illness unite!)


Karkat
October 3rd, 2015, 08:22 PM
I just decided this might be a nice addition to VTGH, as most questions are about specific things, and they may or may not get answered fully if they're harder to answer/more rarely occurring

There's also not 'really' a set place to vent Spoonie (chronic illness) frustrations

I know we have a lot of those who experience clinical depression, anxiety disorders, bipolar, BPD, and who are on the autism spectrum. I also know there are a handful of us with addiction problems, or general health problems.

So I figured this might be a nice little place to ask questions more related to chronic illness, share frustrations, talk to other spoonies about what works for them etc

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Here's a little intro survey, if you wish.

Name:
Age:
Country/continent:
Chronically ill?:
Undiagnosed?:
Any health details or additional info here:

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My answers

Name: Ren
Age: 18
Country/continent: North America (USA)
Chronically ill?: Yes
Undiagnosed?: Some things
Any health details or additional info here: I have OCD, GAD, EDNOS, bipolar disorder, ADHD, hypoglycemia/unknown metabolic condition, asthma/respiratory problems, generalized weakness and fatigue, migraines, and joint pain.

I also have multiple undiagnosed or unknown illnesses, such as Asperger's syndrome/med-high functioning autism, dissociative disorder (semi-diagnosed), possible hypo/hyperthyroidism, swollen lymph nodes/possible lupus/autoimmune disorder/lymphoma, possible endocrine disorder, possible arthritis, possible epileptic or other seizure disorder/post mini-stroke, chest pain with unknown cause, possible sleep disorder.

Yeah as you can tell I'm a little broken :')

Note: I do not endorse self-diagnosis or non-professional diagnosis, however some conditions such as adult autism, are hard to diagnose and most mental health workers do not bother unless the adult is low-functioning (in which case they would've likely been diagnosed before this point)
I also live in an area with no specialists for hundreds of miles. The quality of medical care here is subpar as heck and sometimes you have to pose possibilities on your own so when you find a decent doctor, you know the questions to ask.

StoppingTom
October 3rd, 2015, 08:34 PM
Name: Tom
Age: 17
Country/continent: New York, USA
Chronically ill?: Yeah
Undiagnosed?: More like "we can't figure out wtf is wrong with you but it's there"
Any health details or additional info here: Chronic photo/audio sensitive migraines, chronic debilitating back and knee pain, Major Depressive, Semi-paralyzed pinky finger (PT has helped me move it somewhat)

Babs
October 6th, 2015, 04:30 PM
Name: Berea
Age: 16
Country/continent: US of A
Chronically ill?: ja. Well, I'm not sure if you'd classify epilepsy as an illness or a medical condition but it's there.
Undiagnosed: I couldn't say for sure, but I'm pretty sure.
Any health details or additional info here: I've had partial seizures almost everyday for as long as I can remember.

Karkat
October 8th, 2015, 01:26 PM
Name: Berea
Age: 16
Country/continent: US of A
Chronically ill?: ja. Well, I'm not sure if you'd classify epilepsy as an illness or a medical condition but it's there.
Undiagnosed: I couldn't say for sure, but I'm pretty sure.
Any health details or additional info here: I've had partial seizures almost everyday for as long as I can remember.

It can definitely be debilitating o: (I've had tremors and partial seizures since I was in my young teens, and my mom's had full on seizures for a few years longer than that, and tremors and partial seizures since she was a teenager)

Most frustrating thing for me is they cause me to sporadically drop things, and being the hypochondriac I am I always think I've got like, Parkinson's or MS or someshit

But it's pretty scary and inconvenient at the very least for me, and it's basically sucked up the past 5 years of my mom's life, sadly, so