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AmericanHorror
July 17th, 2016, 10:20 PM
So, I've just been diagnosed with the rare disorder of Narcolepsy (https://en.wikipedia.org/wiki/Narcolepsy). I'm just wondering if anyone else here has this and has any pro tips on how to deal with it that they're willing to share with me. Also, if anyone had any questions, ask away.

warbit
July 18th, 2016, 05:57 PM
I don't have it myself but I imagine if you got some black out curtains for your room and then removes all concepts of time like phones and clocks, then your body wouldn't know how much sleep it has had then you could set alarms for when to go to sleep and when to wake up and your body would try to make you sleep more if you didn't know what time it was....

That probably made no sense... :)

jamie_n5
July 19th, 2016, 04:46 PM
Is there medications to help keep you awake and alert? How does your doctor help treat this?

Flapjack
July 19th, 2016, 04:49 PM
Is there medications to help keep you awake and alert? How does your doctor help treat this?
Did you even read the page she linked?
Symptoms include excessive daytime sleepiness (https://en.wikipedia.org/wiki/Excessive_daytime_sleepiness),
Another symptom is cataplexy (https://en.wikipedia.org/wiki/Cataplexy)So, I've just been diagnosed with the rare disorder of Narcolepsy (https://en.wikipedia.org/wiki/Narcolepsy). I'm just wondering if anyone else here has this and has any pro tips on how to deal with it that they're willing to share with me. Also, if anyone had any questions, ask away.
I'm so sorry you have to go through this!:( I do not have the condition myself but I am here for you if ever you need to talk to someone or just rant or whatever:)

Dark_Desires
July 20th, 2016, 11:39 AM
While i don't have it i have watched my Best Friend go from
the not knowing to diagnosed and now very well managed stage.

Best tips i can offer is talk to your specialist/Doctor and he will be able
to give you the best advice.
Doing your medication on time and in routine can be a big help
from i have noticed and also a good sleeping routine.

Just managing it as best you can will make a world of difference.
Best of luck and hopefully it works out well for you just like my Best Friend.

City Kid
July 30th, 2016, 08:00 AM
Mental Illnesses :arrow: VT General Hospital